How Can I Participate?

Study Participation and Timeline

To gather your valuable insights:

● Initial Survey: You'll receive an invitation packed with a survey asking about your experiences, symptoms & side effects, and overall well-being. You can complete the survey online or on paper.

● Follow-up Surveys: You’ll receive 3 shorter follow-up surveys throughout the year (about 4-months, 8-months, and 12-months after the invitation packet). These surveys will ask about your experiences over time.

● Survey Duration: Each survey takes about 20-30 minutes to complete.

● Medical Records Release: Some participants may be asked to complete a Medical Records Release Form. If you are selected for this portion of the study, we would like your permission to access your medical records related to your colorectal cancer care. This will help us understand the treatment you received.

Important Note: If you require assistance in completing the survey, you may ask a family member or friend to assist you in marking your responses. However, please ensure that the answers reflect your own thoughts and feelings.

Compensation

To thank you for your time and effort in participating in THRIVE, we will send you:

● Initial Survey: A $40 gift card after you complete the baseline survey.

● Follow-up Surveys: A $15 gift card after you complete each follow-up survey at 4, 8, and 12 months.

● Medical Records Release: A $15 gift card after you send back the signed Medical Records Release Form, if you are selected for this optional part of the study.

Other studies you might be invited to join:

THRIVE: Symptom Snapshot

You may also be invited to participate in “THRIVE: Symptom Snapshot”. This is a related study focused on gathering more detailed information about your experiences. This study will involve brief mini-surveys, each taking less than 5 minutes to complete. You will receive these surveys about twice a week for 4 months, and can complete them on an electronic device of your choice (smartphone, tablet, laptop, or desktop computer). You will receive up to $160 in appreciation for your participation.

While 4 months may seem like a long time, remember that the mini-surveys are very short. Participants in the pilot test have told us that the mini-surveys are manageable and take very little time to complete.

The “THRIVE: Symptom Snapshot” study is crucial for our understanding of the experiences of people living with metastatic colorectal cancer and identifying potential areas in need of support. If you receive an invitation, we would truly appreciate your participation.

BioTHRIVE-NJ

BioTHRIVE-NJ: Biopsychosocial Study to Track Health and Responses to Living with Cancer in New Jersey

If you live in New Jersey, you may be invited to participate in a related study called "Bio-THRIVE-NJ." The purpose of this study is to learn about the physical health and well-being of people with advanced colorectal cancer. This research opportunity is open to THRIVE participants who live in Bergen, Essex, Hudson, Morris, Passaic, or Union counties in New Jersey.

If you choose to participate, you will be asked to complete a study visit that includes surveys, physical measures of your health (such as blood pressure, balance, walking, grip strength and memory), and a blood draw. The study visit will take place at the research center in Nutley, NJ. You can be reimbursed for travel costs or mileage to and from the research center, or an alternative community-based location may be available if needed. In appreciation of your time, you will also receive a $100 gift card.

This study will help researchers to learn about the health challenges some people with mCRC face, and to also learn about people who are living well with mCRC. The important information will help us to identify new ways to support the well-being of people living with mCRC. If you live in northern New Jersey, we hope you will consider participating. For more information about the BioTHRIVE-NJ study, please contact Amanda Khoudary by email at amanda.khoudary@hmh-cdi.org.

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